December 23, 2019 adopting a boy, China trip, Christmas, limb difference, Orthopedic 1 Comments

Being a family of faith, we try to find most of the stories we tell and lessons we teach to our children this time of year from the Bible where the Christmas story is found. But we do own and enjoy a copy of the Limited Keepsake Edition of the Original Christmas Classics, including Rudolph the …Read More

August 23, 2019 adopting a boy, clubfoot, Education, Family Stories, feeding/swallowing therapy, June 2019 Feature - Orthopedic, Nail Patella Syndrome, Orthopedic, speech therapy 6 Comments

Life is full of things we thought we could never handle… until we have to. As we considered growing our family via adoption, one thing we thought we “couldn’t handle” was a child with limited mobility. We already had three very active children. We love to hike, bike, go to the beach or spend a …Read More

June 30, 2019 arthrogryposis, Family Stories, June 2019 Feature - Orthopedic, older child adoption, Orthopedic 5 Comments

“Courage, sacrifice, determination, commitment, toughness, heart, talent, guts. That’s what little girls are made of; the heck with sugar and spice.”– Bethany Hamilton Arthrogryposis Multiplex Congenita. It’s a mouthful; most people shorten it to Arthrogryposis. Essentially, it means multiple joint contractures that affect two or more body areas. According to the Genetic and Rare Disease …Read More

June 24, 2019 adopting a boy, arthrogryposis, clubfoot, Family Stories, June 2019 Feature - Orthopedic, medical needs checklist, Orthopedic 2 Comments

Staring at the long list of special needs, trying to decide which boxes to check we were open to, seemed overwhelming. Researching each medical condition was just as daunting. Did we check the right boxes? How can we “decide” which special need our child will have? Arthrogryposis multiplex congenita (AMC) first seemed like a big …Read More

June 17, 2019 adopting a boy, Education, Family Stories, IEP, June 2019 Feature - Orthopedic, limb difference, occupational therapy, Orthopedic, radial aplasia, radial club hand 4 Comments

Limb difference was one of the boxes we checked for our first China adoption in 2013. So when we received our son’s file, it was relatively easy to say yes. Our soon-to-be son, at 10 months of age, was the youngest child on the shared list that day. We were open to a boy or …Read More

December 2, 2018 arthrogryposis, clubfoot, December 2018 Feature - The Gift of Adoption, Family Stories, limb difference, Orthopedic 1 Comments

This morning at 8 AM…. My little girl and I… together rocking in a chair. Her tiny little body cozy against mine, her head confidently against my chest, her breath in the same rhythm as mine, both enjoying this very precious moment. Mother and daughter…. united in a harmony that I couldn’t imagine before. Life …Read More

September 29, 2018 adoptee perspective, adult adoptee, arthrogryposis, heritage trip, orphanage, orphanage visit, Post-Adoption contact, September 2018 Feature - Hearing From Adult Adoptees, telling their life story 3 Comments

I was adopted at two years so I don’t really have memories before coming to America. But I have always had a memory of being in a bathtub surrounded by colorful plastic balls. I also remember laying in a crib with a purple blanket draped over the top like a tent watching my mom on …Read More

August 23, 2018 adopting out of birth order, Central Nervous System, clubfoot, Family Stories, mobility issues, older child adoption, Orthopedic, scoliosis, spina bifida, virtual twins, wheelchair user 5 Comments

I’ll never forget the morning I found my daughter Ava and son Daniel huddled around the family computer. The screen was blocked by their two heads… “Whatcha doin’?” I inquired. They both turned around to reveal a waiting child adoption site that they had been scrolling through. “Mom, look at this little girl… isn’t she …Read More

August 3, 2018 Family Stories, June 2018 Feature - Orthopedic, large families, medical needs checklist, Orthopedic, osteogenesis imperfecta, pre-adoption, wheelchair user 2 Comments

Very quickly after beginning of our adoption process we were asked to fill out a Medical Needs Checklist… a checklist of medical conditions commonly seen in China’s orphans. You must go down the checklist and check “yes”, “no” or “willing to discuss” about adopting a child with the listed condition. Nothing makes you feel more …Read More

July 21, 2018 adopting a boy, adopting two at once, amniotic band syndrome, amputation, June 2018 Feature - Orthopedic, limb difference, missing arm/leg, Orthopedic, prosthetics 6 Comments

It’s summer, and time to celebrate one of my very favorite days… my “youngest little’s” birthday! I am the mama to four amazing, yet very different boys, and I relish celebrating everything about these sweet souls. Especially this little guy – Johnny. This is Johnny-Cake’s second birthday home, and I am forever humbled that God …Read More

July 3, 2018 adopting again, amputation, Family Stories, June 2018 Feature - Orthopedic, missing hand/foot, neurofibromatosis, Orthopedic, prosthetics, pseudoarthrosis, Uncategorized 4 Comments

Newly home from China, we were settling in as a family of five. So when we realized we were going back to China for child number four, we felt quite surprised. A fellow adoptive mom uses the hilariously appropriate term “unprotected paperwork.” Uh-huh. We are happily nodding our heads over here in agreement. It all …Read More

July 1, 2018 adopting a boy, amniotic band syndrome, amputation, Family Stories, June 2018 Feature - Orthopedic, missing arm/leg, Orthopedic, prosthetics, visible special need 0 Comments

We always thought adoption would be a part of our family’s story. After attempting a domestic adoption in between our two biological daughters, we read a story that pulled our hearts toward China. After a lot of prayer, we took a leap of faith. Just a few months later, we were matched with our sweet …Read More

June 23, 2018 amputation, Central Nervous System, cerebral palsy, Family Stories, hip dysplasia, June 2018 Feature - Orthopedic, lipomyelomeningocele, missing arm/leg, Orthopedic, prosthetics 0 Comments

When we were matched with our sweet Alexis we were told that she had hip dysplasia. Once we were back in the U.S. and we were able to take her to see a specialist, we found out that she has a form of spina bifida called lipomyelomeningocele, which means a fatty mass had attached to …Read More

June 21, 2018 AFO, Family Stories, fibular hemimelia, June 2018 Feature - Orthopedic, leg length discrepancy, limb difference, medical trauma, Orthopedic, referral, should we adopt?, surgery, trauma, waiting for referral 12 Comments

If you have adopted, you know the overwhelming process of filling out the medical needs checklist (MCC). For those that haven’t, this is a piece of paper with a wide range list of medical needs, each having little boxes beside them, and your job is to check the ones you are open to within adoption. …Read More

June 16, 2018 AFO, cerebral palsy, Family Stories, hemiplegia, hip dysplasia, June 2018 Feature - Orthopedic, Orthopedic 0 Comments

As a parent, you never want to “choose” to go through painful procedures and surgeries. However, when parenting a child with special needs, one has to weigh pros and cons of various therapies, tests, procedures, surgeries, medications… the list goes on and on. And when your child is functioning well overall, the decisions can be …Read More

June 9, 2018 adopting as first time parents, clubfoot, Family Stories, June 2018 Feature - Orthopedic, medical needs checklist, Orthopedic, waiting for referral 0 Comments

Preslie’s story began in November of 2013. She was born to parents in China who I’m sure loved her so much but chose to give her up so that so that she could get the medical help that she so desperately needed. My husband and I also started the adoption process in November of 2013. …Read More

June 3, 2018 adopting a boy, Family Stories, June 2018 Feature - Orthopedic, medical needs checklist, missing fingers/toes, Orthopedic, should we adopt?, symbrachydactyly, visible special need 2 Comments

It was early 2015 when our journey toward our son Noah began. Unlike so many families that adopt, it was not a lifelong dream of mine that was finally going to become a reality. No, it was a rather quick process that began one night as I laid in bed watching the evening news. Images …Read More

April 1, 2018 adopting again, April 2018 Feature - CNS, Central Nervous System, Family Stories, hip dysplasia, hydrocephalus, leg length discrepancy, older child adoption, reluctant husband, spina bifida 3 Comments

Our journey to spina bifida started with a book — Knowing God by J.I. Packer. I was reading the book for an online book/Bible study. It was a meaty book, and I struggled to get through many parts of it. But then I read these words: “Nor is it the spirit of those Christians – …Read More

February 6, 2018 adopting again, amniotic band syndrome, complex heart defects, developmental delays, February 2018 Feature - Heart, Heart System, Orthopedic, profound deafness, Sensory System, toddler adoption, virtual twins 5 Comments

I’m a mama to four heart babies. And this is our story of becoming a family… our story of going from no children to four children in 15 months. This is our crazy, wonderful life. It was a big day. It was the day my husband messaged me at work and told me that he …Read More

November 12, 2017 complex medical, developmental delays, Family Stories, growth hormone deficiency, hip dysplasia, Nutrition, Prader-Willi syndrome 6 Comments

Hi, I’m Kallie. I am married to David, and we have two precious sons through adoption, Jahleel and Camden. Jahleel is five and a half years old and Camden is three and a half. Camden just came home from China this past spring. Both our boys have diagnoses of Prader-Willi syndrome (PWS), but they present …Read More

September 11, 2017 amputation, Education, limb difference, missing fingers/toes, Orthopedic, prosthetics, public school, September 2017 Feature - Visible Special Needs, visible special need 7 Comments

Anna Grace is five years old. She loves all things Disney and princesses. Her favorite outings are to the zoo, museum, or playground. She takes dance class and swimming lessons. When she grows up, she wants to be a doctor, dance teacher, singer, or dog trainer. She loves playing outside with her friends, especially if …Read More

September 9, 2017 BAHA, Craniofacial, Family Stories, hearing loss, limb difference, microtia, Orthopedic, Sensory System, September 2017 Feature - Visible Special Needs, visible special need 0 Comments

Recently someone reached out to ask what I would tell a group of Boy Scouts if I could speak to them as a special needs mom. This friend, who works everyday as a speech therapist, had been invited to speak to a local Boy Scout troop about interacting with children with special needs. Upon reading …Read More

July 11, 2017 amniotic band syndrome, Family Stories, June 2017 Feature - Orthopedic, missing fingers/toes, Orthopedic, referral, visible special need 0 Comments

Our adoption journey began many years before the first paper was signed and sent off to our agency. My husband and I spent the summer after our junior year in college in China studying language and culture. We actually began dating at the end of our time in China and that summer holds a very …Read More

July 9, 2017 homeschool, June 2017 Feature - Orthopedic, Laine, large families, Orthopedic, radial club hand 2 Comments

Hi there! I’m Laine and I’m a mama to ten blessings from China and four bio blessings! It’s been a really long time since I’ve written a post for NHBO. I am feeling quite rusty in my writing skills these days! (But ask me to fix a large meal or read to a bunch of …Read More

July 4, 2017 Family Stories, June 2017 Feature - Orthopedic, limb difference, Orthopedic, reluctant husband, should we adopt? 0 Comments

I can’t. Such a short phrase can carry so much defeat behind it. It’s a phrase that I was sure we would hear often when my husband and I were called to adopt a child with a limb difference. So many questions and emotions ran through my mind the day that I stared at our …Read More

June 30, 2017 ectrodactyly, June 2017 Feature - Orthopedic, limb difference, medical needs checklist, missing fingers/toes, Orthopedic 2 Comments

I can remember wanting to adopt for a long time — specifically wanting to adopt a daughter from China. My amazing stepdad adopted me when I was 12 so, since I was young, adoption has been close to my heart. When my husband and I married in 2004, adoption was something we knew we wanted …Read More

June 28, 2017 Family Stories, June 2017 Feature - Orthopedic, Orthopedic, Poland syndrome 0 Comments

It’s funny how you remember the exact moment certain things happen in your life; a phone call about your first job, winning a special award, the first time you fell in love. Moments like these seem to be forever captured in a certain part of your brain, a place that can be retrieved and played …Read More

June 27, 2017 adopting a boy, adopting again, adopting out of birth order, arthrogryposis, Family Stories, June 2017 Feature - Orthopedic, mobility issues, older child adoption, Orthopedic, should we adopt?, wheelchair user 4 Comments

My husband and I met in middle school. We didn’t date until right after high school, but were close friends from early in our relationship. We dated through college and got married right after my graduation. We met a family who had children through adoption, and that was when the seed was planted. We knew …Read More

June 26, 2017 clubfoot, Family Stories, June 2017 Feature - Orthopedic, Nancy, Orthopedic 0 Comments

Jude is amazing. He’s taken everything in stride, and I think he even has a bit of pride about his scars, that sense of I did this and not only am I okay, but I’m better and I love who I am! And, of course, I can’t disagree with him. He is awesome and a …Read More

June 20, 2017 adopting again, arthrogryposis, Family Stories, June 2017 Feature - Orthopedic, medical needs checklist, older child adoption, Orthopedic 3 Comments

She loves bubbles and baby dolls. Her favorite color is yellow. She is a quick learner and a compassionate friend. She has the most joyful laugh, and an infectious smile. And we wouldn’t have known any of these aspects of our daughter had we been scared off by one single word… Arthrogryposis. Her story began …Read More

June 17, 2017 adopting a boy, clubfoot, Orthopedic, physical therapy, surgery 0 Comments

The first time I saw him, he was ten months old, and we had gone to volunteer in the sweltering month of August. He was wearing not only a million-dollar smile, but double leg casts that stretched from his little hips to his tiny toes from a recent surgery. He was sweet, laid back, adorable. …Read More

June 10, 2017 arthrogryposis, clubfoot, June 2017 Feature - Orthopedic, mobility issues, Orthopedic, undiagnosed SN, walker user 0 Comments

If I ran out of the room right now I wonder if anyone would notice? We were standing in the civil affairs office in Guiyang, Guizhou, China and the reality of what was about to happen came crashing down as she was carried through the doors. We were seeing her in person for the first …Read More

June 7, 2017 adopting again, aqua therapy, Family Stories, June 2017 Feature - Orthopedic, Orthopedic, osteogenesis imperfecta, physical therapy 1 Comments

My husband and I knew – 2016 was going to be the year we embarked upon another adoption journey. We’d given birth to our first child, a daughter, in 2010. In February 2013 we adopted a precious little girl from China, and we knew then that we’d adopt again. First, though, we felt like God …Read More

June 1, 2017 amniotic band syndrome, arthrogryposis, clubfoot, Favorite Family Stories, June 2017 Feature - Orthopedic, limb difference, Orthopedic, radial club hand, skeletal dysplasia 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

May 17, 2017 Central Nervous System, Chiari 1 malformation, clubfoot, Family Stories, hydrocephalus, hydronephrosis, neurogenic bowel and bladder, spina bifida 2 Comments

When we started our adoption process we wanted a healthy child. That’s what everyone wants – adopted or biological – right? Our hearts changed when we had the privilege of working with special needs kids, and we saw so much life and strength in them that we changed our adoption papers to special needs. When …Read More

April 11, 2017 amputation, congenital femoral deficiency, Family Stories, limb difference, missing arm/leg, Orthopedic, prosthetics, proximal femoral focal deficiency, rotationplasty 2 Comments

Driving in the car recently, I was listening to my girls’ conversation with each other and was struck by the words that came out of their mouths. Almost perfectly pronounced, and discussed quite nonchalantly, words like: prosthetic leg, surgery, backwards foot. It sort of hit me that these are words that not everyone (especially little …Read More

February 13, 2017 AFO, Courtney, limb difference, Orthopedic 6 Comments

I will never forget the day we received “the call.” I had just walked my son into preschool and came back to the car to see a missed call from our adoption agency. I quickly dialed my social worker’s number and she said she had the file of a beautiful little girl she wanted to …Read More

October 13, 2016 Amy, complex heart defect, Heart System, kyphosis, scoliosis, surgery, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula 5 Comments

“I am fearfully and wonderfully made. Your eyes saw my unformed body when I was knit together in my mother’s womb.” – Psalm 139 I can count on two hands the physical diagnoses our little Chinese warrior princess has in her medical history: tetralogy of Fallot (repaired) tracheoesophageal fistula (repaired) stricture of esophagus tracheomalacia chronic …Read More

July 26, 2016 amniotic band syndrome, Family Stories, medical needs checklist, Orthopedic, pre-adoption, should we adopt?, waiting for referral 6 Comments

Sometimes you are clearly given a gift of grace and sometimes you find yourself in it. Both are of Him and from Him and are equally overwhelming and exciting. This is a glimpse of both. “For my thoughts are not your thoughts, neither are your ways my ways,” declares the Lord. – Isaiah 55:8 ….. …Read More

July 1, 2016 adopting a boy, amputation, Family Stories, June 2016 Feature - Orthopedic, Larsen Syndrome, limb difference, older child adoption, prosthetics 1 Comments

My son, J, has Larsen syndrome, a condition of multiple joint malformations. I write this in hopes that it shows how manageable this condition is. In the summer of 2012, I saw a video that an advocate had posted, of a little boy riding a scooter around a play area. His nanny was directing him …Read More

June 30, 2016 adopting a boy, arthrogryposis, clubfoot, Family Stories, June 2016 Feature - Orthopedic, Orthopedic 1 Comments

I knew the second I saw his picture that he was my son. I still remember scrolling through my facebook feed when my heart drew me into the boy on the screen and with only seeing his hands I knew… He was mine. We were not looking to adopt and years before we would have …Read More

June 28, 2016 amputation, Family Stories, fibular hemimelia, June 2016 Feature - Orthopedic, leg length discrepancy, limb difference, missing fingers/toes, Orthopedic, prosthetics 4 Comments

We first saw her profile on our adoption agency’s web page. Her special need was listed as lower leg deformity, a layman’s term for fibular hemimelia, a congenital condition of missing/shortening of fibular bone, curved tibia (shin bone) and underdeveloped foot. I turned to my husband and said: “Hey, she looks kinda cute, but we …Read More

June 26, 2016 adopting again, amniotic band syndrome, amputation, June 2016 Feature - Orthopedic, missing fingers/toes, Orthopedic, prosthetics, referral 0 Comments

As mom to four biological boys, I remember the ultrasound appointments where the heart, kidneys, bones and limbs were surveyed and carefully measured. I was blessed with healthy boys and encouraging news from each of those prenatal appointments. Often, I wonder if my girls’ China mommies had ultrasounds, and if they knew prior to birth …Read More

June 16, 2016 Family Stories, June 2016 Feature - Orthopedic, Orthopedic, osteogenesis imperfecta 3 Comments

Our littlest love, with us now for three months, has Osteogenesis Imperfecta (OI), also known as brittle bone disease. Adopting a child with OI was not something we set out to do, nor was OI something we had ever been exposed to or educated about, but when Tessa Kate’s adorable picture appeared on the China …Read More

June 13, 2016 Family Stories, June 2016 Feature - Orthopedic, Larsen Syndrome, Orthopedic, skeletal dysplasia 3 Comments

I feel that I am not just biased when I say my son is truly inspiring. He may be only five years old, but he is braver than any grown adult I have ever met. I am so excited to share his story with you. At the beginning of our adoption process, we found our …Read More

June 8, 2016 adopting again, amputation, Family Stories, fibular hemimelia, June 2016 Feature - Orthopedic, leg length discrepancy, limb lengthening, missing fingers/toes, Orthopedic 1 Comments

Our daughter had been asking for a little sister for awhile…. I had been looking at the waiting child website off and on for a few days when I just happened on his face. It was love at first sight. His diagnosis was malformed right foot. The picture in his file showed that his foot …Read More

June 4, 2016 amputation, Family Stories, June 2016 Feature - Orthopedic, limb difference, Orthopedic, prosthetics 2 Comments

“She is the perfect combination of warrior and princess.” This phrase echoed through my mind as I watched her jump and twirl down the street, still wearing her tutu, waving her pirate sword in the air. She had just completed her first dance recital. I told her earlier that day, “Sometimes little girls get flowers …Read More

June 3, 2016 adopting as a single mom, diastematomyelia, Family Stories, June 2016 Feature - Orthopedic, older child adoption, Orthopedic, scoliosis, spina bifida, tethered cord, working mom 2 Comments

I am a happy and busy single mom to two wonderful daughters adopted from China. My older daughter, Corrie, was adopted in 2002 through the NSN (non-special needs) program; she is a smart, funny, and thoughtful young lady who loves animals and plans to be a veterinarian when she grows up. For years Corrie and …Read More

May 21, 2016 adopting a boy, clubfoot, complex heart defects, Family Stories, hypospadias, PDA, waiver request 3 Comments

Who knew ​this momma – who had once upon a time envisioned life with my husband to include ​a couple of ​children, a spacious home, and (of course!) many family vacations to tropical destinations​ – would instead​ learn (​and ​daily​ re-learn)​ that the path to the​ purest​ peace and the greatest joy​ is to​ yield …Read More

February 3, 2016 Family Stories, hip dysplasia, misdiagnosed SN, mobility issues, Orthopedic, port wine stain, Sturge Weber Syndrome, Vascular System 1 Comments

My husband and I were only married a year when the Lord called us to adopt. Separately, we both felt the Lord speak to us about adopting a little girl from China – we told each other a few days later. It was encouraging to hear that call, and we were both excited for the …Read More