May Special Needs Focus (and Favorite Family Stories): Vascular
May 1, 2017
Favorite Family Stories, hemangioma, Klippel-Trenaunay Syndrome, May 2017 Feature - Vascular, port wine stain, Sturge Weber Syndrome, Vascular System
The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More
Then and Now: Abby and Evie
November 23, 2016
adopting again, adopting out of birth order, Family Stories, food issues, Heart System, homeschool, November 2016 Feature - Then and Now, older child adoption, orphanage behaviors, port wine stain, spina bifida, VSD
November is Adoption Awareness Month. And our focus is Then and Now… glimpses into the lives of children – children who were once orphaned – who are now beloved family members. Daughters, sons, sisters and brothers who are now blossoming in the love of a forever family… ……….. We have been blessed with two beautiful …Read More
The Lucky Ones: Adopting a Child with a Visible Special Need
November 13, 2016
birthmark, Family Stories, hemangioma, phakomatosis pigmentovascularis, port wine stain, Vascular System
The Lord uses many avenues to speak to the hearts of his people and call them forward to adoption. For some that call comes from the Bible and teachings of the church, for some that call comes through knowing people who have adopted, some people meet the vulnerable in orphanages and fall in love, and …Read More
In the Quiet Moment
May 23, 2016
Family Stories, Kristi, port wine stain, Sturge Weber Syndrome, Vascular System
On March 20, 2009 I spent the quiet moments of nap-time looking at waiting child programs with various adoption agencies. Home from China just four months with our second child, we weren’t ready to expand our family just yet, but as a planner I wanted to have ‘all my ducks in a row’ for when …Read More
The Perfect Fit for Our Family
February 3, 2016
Family Stories, hip dysplasia, misdiagnosed SN, mobility issues, Orthopedic, port wine stain, Sturge Weber Syndrome, Vascular System
My husband and I were only married a year when the Lord called us to adopt. Separately, we both felt the Lord speak to us about adopting a little girl from China – we told each other a few days later. It was encouraging to hear that call, and we were both excited for the …Read More
Corina’s Story: Adopting a Child with Sturge-Weber Syndrome
May 1, 2015
birthmark, Family Stories, Klippel-Trenaunay Syndrome, May 2015 Feature - Vascular, port wine stain, Sturge Weber Syndrome
“You can’t direct the wind but you can adjust your sails.” – Unknown No truer words have I ever read that bring home the reality of our daughter’s diagnosis. Our adoption journey is a story in itself, and best for another time. We have had several wise friends point out that the complications of even …Read More
Everyday girl
April 11, 2013
heart defect, Kristi, port wine stain, vision issues
I watch her run across the yard, her straight, black ponytail bouncing over her self-selected outfit (which today, for once, is rather tame) and from the back she seems like just any other, everyday, six year old girl. Then something grabs her attention and she turns around. As she glances past me her face breaks into …Read More
Mixed emotions
October 11, 2010
Kristi, port wine stain, Sturge Weber Syndrome
A week from today my beautiful girl will have her first appointment with the laser surgeon. The procedure itself will last less than fifteen minutes from the time anesthesia starts until I’m called back to recovery. Much less complicated and involved than the two eye surgeries she’s had so far. And yet I find myself …Read More
US 35 North ~ revisited
June 11, 2010
Kristi, port wine stain, Sturge Weber Syndrome
I bet that I’ve ridden the stretch of US 35 North between Charleston, WV and Dayton, OH at least 100 times in my life. It’s familiar. I know where to expect the power plants, glimpses of the river, the convenience stores, and the grand farm houses as we make our way “home” to western Ohio. …Read More
Reflections from my first time in "the waiting chair"
April 11, 2010
congenital glaucoma, Kristi, port wine stain, surgery, vision issues
Welcome to Kristi, our newest contributing blogger. Kristi has three children adopted from China and her newest daughter, Darcy, joined their family in February. Kristi blogs about their family at Fireworks and Fireflies. Wednesday of this past week I joined a club. A club I never would have imagined myself in just a few short …Read More
Carli Mei
November 26, 2008
birthmark, Family Stories, hemangioma, port wine stain
By Brandy, mother to Carli Mei from China, with port wine stain birthmark Chosen We’re matched! We’re matched! I just remember that feeling of elation like it was yesterday. After a round of “matching” 3 months earlier and our family not being “chosen”. It was a day I tried to remain guarded…tried. My heart was …Read More