June 7, 2014
Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL
6 Comments
Sometimes I forget that we have a child who is a “heart baby”, a lifelong cardiac patient, a survivor. I see her scars everyday. Scars from a surgery I wasn’t present for, scars from one I was; and, I have come to love what they represent. They are a daily reminder of healing, a unique …Read More
May 7, 2014
Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL
4 Comments
A year ago today we had spent only one day with our daughter. After arriving in China, we spent 3 days in Beijing, visited the place she called Home for almost a year and met the women she called “mama”. Then we traveled to XinJiang, her province, tried to sleep on Gotcha Day Eve, and …Read More
April 7, 2014
Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL
0 Comments
I vividly remember reading our referral paperwork. I remember first reading the descriptions of her developmental milestones and evaluated her development through mom and teacher goggles… “she follows objects… she is tracking… she is grasping things… she is babbling and forming simple sounds… she turns her head when there is a noise… she can hear …Read More
March 7, 2014
Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL
4 Comments
Don’t you love those acronyms? I have come to really appreciate the time they save, the space they save, and that I can safely dodge oodles of mispronunciation. For example, until 2012 those letter sequences meant nothing to me. If someone would have told me years ago how much I would come to know about …Read More
